Showing posts with label st jude. Show all posts
Showing posts with label st jude. Show all posts

Monday, September 22, 2008

ok ok

if you just read my last post - i said there was NO book of Jude - thanks to Carol, I now there there is - so if you go back to that post and read it - you won't find that information. I even looked it up and didn't see it. Jason is the one that told me there is no book of Jude - so I blame him. I mean, us Catholic girls didn't have to learn the books. That's my story and I'm sticking to it.

It's still crazy that he thought I was lovin' St. Jude. The Saint, not the hospital.

lisa

I did it!

I did it, I really did it. I took the plunge - bought a pattern, fabric, thread, straight pins and a pin cushion. Yes, I already had a pin cushion somewhere, but haven't been able to locate it.

I've been watching others sewing projects and just really wanted to sew something the right way. Not guess at measurements. Not mess up and have to fix it because I wasn't following any real directions. I wanted to sew with a purpose - and have a good outcome.

So Saturday I ran to Hobby Lobby and picked up the pattern I wanted. I had searched the Simplicity website for patterns. I went through the bags, crafty things, and aprons and decided on this one:



My kitchen is brown and red with a little black here and there. It's really just things I like thrown together so I wasn't really sure if I would find fabric that really matched the kitchen so I just picked red and black and went with it. Here's the end result:



I almost wish I'd picked an apron with pockets, because I would use it more if it had pockets - but it was so cute, I couldn't help myself. I loved the ruffles!! Very girly.

Jason asked me why I was doing an apron when I never wear them. Hmmm - I have several - two that I've made now (the first one was not as cute as this - but ok, and honestly, I don't even know where it is right now) and a few I've collected. And I really don't wear them but I'm going to start!! I wish I had a really cute pink one for this weekend's Scrap Pink at Scrap Etc.

Something funny that happened - after running to Hobby Lobby, I ran to Publix for groceries. As I was wearing my favorite tshirt - I heart St. Jude - from the gift shop at the hospital. The guy checking me out asked me what in particular I loved about St. Jude. Like it was strange. I said that my son was a patient there. And he said OH!! I get it. I thought you just really liked Saint Jude - like the book of Jude was your favorite in the bible and that Saint Jude must have just done something you really liked.

Seriously?

I would usually take this opportunity as a teachable moment - tell him how great St. Jude is and how deserving they are of our money, prayers, etc. I would talk about how my son is cancer free, thanks to them. But, I didn't think it would be worth it. I mean, this guy thought I would wear a shirt proclaiming my love for my favorite Saint!!

Weird!!

Thank goodness at this point in time, he's just a checker at Publix.

later, lisa

Friday, February 29, 2008

Busy Busy Bees

That's what we've been - busy!! Last week we were just busy getting ready for this week and this week we were out of town for four days. We spent the beginning of the week in Memphis. Cole had a check up at St. Jude and everything went well. His MRI was fine - all clear. He's growing too, which is a blessing!! A few other things were discussed, but nothing life changing at this moment. Things we need to think about for the future. We're looking at some programs for the summer, maybe some art classes or something - but that's expensive, so we're thinking about it. Cole does need to work on things at home this summer - getting ready for second grade. I bought a book the other night that's full of work to get kids ready for second grade. So that's a good start. I have some other things we can work on. We also went to the Parent Teacher Store today and looked around. Cole is going to pick an animal and we're going to learn all about it this summer!! We saw cute little tubes of animals in the store and this prompted the discussion of how we could learn about animals. So far, his pick is a jaguar but I was secretly hoping for penguins. I like penguins. Anyway, I'll have my work cut out for me!!

Speaking of work, I'll be working a little for the next two months. I'm filling in for a maternity leave at Cole's school. So I'll be working for the next two months - YEAH!! I'm so excited - it'll be great experience and exposure. I spent a little time there today getting to know the teacher's routine and such. I think it's going to be a great thing. And getting paid regularly will be wonderful!!!

We have our big vacation planned - we're going to DisneyWorld May 31st and we're already counting down the days - 91 days now. Cole is so excited. He's ready to go now and wants everyone we know to go with us. I would love for him to be able to bring everyone he wants with us - he's have a blast. I'm hoping this trip will be even more fun for him than the last - hopefully he'll want to ride more older rides and not just the kiddie stuff. We keep checking out the website and looking at different shows and rides - trying to get him interested in more things. I can't wait - I'm just like kid at Disney. I want to see it all, take it all in! Did I mention I can't wait!!!

I've got a few scrapping plans this weekend - at least, I want to. I want to make a few cards for Lois - that's what my last blog post was about. I have a few layout ideas in my head I'd like to get on paper too. And I have tons of other things I need to be doing - first, cleaning the apartment - it's a wreck from dumping all the stuff in the dining room from Memphis. And we are moving. Yep - Moving!! I have a friend I've known for 15 years I guess. She's living in London right now and needs someone trustworthy to rent her house - and we aren't totally happy in our apartment. It stinks - literally - so it's working out for us and my friend - YEAH! So in the next week the other tenents will be moving out and we'll get keys in a week or so and then we'll start moving in. We're going to paint a little - Cole wants a red bedroom and since he's a little aprehensive about moving again - we'll do whatever it takes to make it an easy transition. We did the same thing when we moved in here - he got a complete Lightning McQueen bedroom and bathroom out of that deal!! So he'll probably get a red bedroom this time. The better news is I'll get a scraproom!! I've already been looking at paint colors - trying to decide what color I want to go with. I instantly thought pink - I mean I'm so outnumbered with boy stuff here - Pink is wonderful. But, I'm not sure that I really NEED a pink room. I mean my scrap stuff is so random - different color containers, totes, etc. So I'm thinking a yummy brown maybe. I would like some extra details though - I was thinking about some design around the top of the walls - maybe a scallop - the Scrap Etc. store had that at their location in Trussville and it was so pretty! So maybe a lighter brown with a darker brown scallop! We'll see!

Well, We're off to dinner with my parents. So, gotta go -

lisa

Sunday, February 3, 2008

Happy February!

I can't believe January just flew by like it did. We had a good start to the month on Friday. I subbed and had a great day, we also went out to dinner and bowling to celebrate my cousin's birthday and that was a lot of fun. I'm still better at Wii bowling than the real thing, but it was fun. We slept late Saturday too, which we rarely get to do when Cole is home. But since he was at Grammy and Granddaddy's - sleeping late was nice. I got up around 9 and went to fix my morning cup of Diet Dr Pepper and turned the laptop on. This is my routine every morning - either the laptop or the desktop. I check my email and I check on one of our sweet little friends we met at St. Jude. I've been following Maddie since we met her - probably even before since we had friends that knew her. The cancer community is like that - sometimes you know all about someone before you actually meet them. You hear their name called over the intercom at St. Jude - paging them to their appointments. Well Maddie was this sweet cutie pie - always the epitome of girly girl. Always in pink or purple, usually some hearts somewhere and a little sparkle too! She was always smiling - always!! Such a sweet personality. It seems like so many of the kids we've met just sparkle in some way - they stand out to you I guess because they are battling something bigger than them with a smile most of the time. They tend to perk up more quickly than any sick adult I've ever known. They forgive their parents quickly for having to hold them down for an ouchie, or something like that. Maddie was really a beautiful little girl. I could also see where a lot of her good spirit came from - her Mom. Brandi was so sweet - also usually with a smile on her face. Probably not because things didn't stink though - I mean, come on, she's in a hospital with her daughter who is fighting cancer. She still had a smile for other parents. A hug to share - so caring and sweet. I never saw her in the halls of St. Jude without a smile for someone. So it was easy to see how Maddie would bloom into the very same type of person. We chatted whenever we saw each other but the kids didn't know each other. Cole kept to himself a good bit when we were there - tending to just play with us or boys - not quite up to playing with girls then I guess. Anyway, I felt very lucky to have met these two special girls!!

Maddie's family was told in early January that her cancer was back and it was just as bad as it was several years ago when she began this fight. The decided to end her treatment and take her home. So home they went, hospice was now taking care of everything. I cannot begin to imagine what they went through to make those decision. I cannot begin to understand or comprehend. What I do know is that their faith in God was so strong, they knew that by believing in Him, praying to Him, asking Him for comfort in their time of need - that will get them through those weeks at home waiting to see what would happen. I prayed each night before bed for Maddie and that her and her mom especially would have time together to make some very special memories that Brandi would hold close to her heart forever. I prayed that she would have a good nights sleep, and a wonderful day with her family, I prayed for a miracle.

On Saturday morning at 3:19am Maddie got her miracle. Not the one I had prayed for exactly but a miracle nontheless. Maddie left her family, holding her mom and dad's hand early Saturday morning. I can't imagine their heartbreak. It took all morning yesterday for me to even get the lump out of my throat. I couldn't even tell Jason because I was so close to tears everytime I thought about telling him - another sweet baby we know is gone.

So the second day of the month was just sad. I hugged Cole a few extra times and was so thankful that he was making a mess in the living room!! I know without a doubt that Maddie's parents would much rather be picking up her toys every day than picking up the pieces of their broken heart and trying to live without her. I wish they could have the joys I have with Cole. We were just so lucky to have the kind of cancer Cole had. I never thought, back then, three years ago, that I would be glad that we had a 'good' cancer. But we did. We were so lucky. We are still lucky. Lucky that we had cupcakes Thursday to celebrate the three year cancer free anniversary. Cole doesn't understand it at all. He never heard the word cancer. I try to tell him things now but he just doesn't get it. And you know, it's ok. He'll get it later and for now, I'm just thankful that he'll be here for me to share the story with.

We head back to Memphis at the end of this month for a big check up. Since it's the anniversary of Cole beginning treatment he'll have all the tests he's had before again. Xray's, psych testing, lots of stuff!! I'm nervous already - just a bit. I always am until we get the word from Dr. Gajjar that everything is fine. Clear scans. He always says it like he knew they would be fine, but no one knows - well God knows of course. Sometimes I just wish He'd clue me in a bit, so I wouldn't stress so much. Jason has to work and has school too, so he isn't making the trip. That stinks. I hate going without him. My mom is going with us though so that will help a ton. I'll be glad for the company - there's no way I could go through the whole thing by myself. Well, I could, but it would be stressful and boring at the same time, with no adult conversation.

Please keep Cole in your mind at the end of the month - just for clear scans and good tests results. Also, please keep Maddie's family in your prayers too. They need it so very badly. My heart breaks for them. Hug your kids!!

lisa

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